'I Value What You have to Say'. Seeking the Perspective of Children with a Disability, Not Just their Parents

Abstract

The UN Convention on the Rights of the Child acknowledges the right for children to express opinions about issues affecting them and the right to have these views heard (Davis, 1998). There has been an increase in the number of international studies including children as informants in research, but there is noticeably less published research including children as informants in Australia if they have a disability. Rather, there has been a reliance on parents/carers for insight into their child's experiences. In this article we present the results of a qualitative pilot study where we interviewed parents and their children who have cerebral palsy about their perceptions and experiences of communication in the medical consultation. We found that the views of children and parents were different, further reiterating the need to seek the perceptions of children as well as their parents. Show more